Overlap or Mixed Connective Tissue Disease
Medications and Other
Programs Available for Teens
A virtual peer mentorship program developed for teens with chronic rheumatic diseases created by Jennifer Stinson’s group at Sick Kids in Toronto. It is now being piloted in the US through the Arthritis Foundation for teens with JIA and other rheumatic diseases. Trained young adults who manage their disease well mentor teens. The mentor and mentee are matched through the Arthritis Foundation. Potential teen participants and mentors must complete an online application. It can be a helpful resource for those who are transitioning and learning to manage their condition independently.
Taking Charge JIA Self – Management Program
For teens with JIA and their parents that has been tested in a multi-site RCT with over 300 patients. This program helps with aspects of health related quality of life including pain interference with daily life and problems with medications.
Juvenile Arthritis Association
A 501(c)3 nonprofit organization whose mission is to bring Community, Awareness, Research and Empowerment (CARE) to children and young adults diagnosed with pediatric rheumatic diseases, as well as to their families.
The Walk to Cure Arthritis
The Arthritis Foundation’s nationwide team walk event that raises funds to fight arthritis. The event generally takes place during the month of May in conjunction with National Arthritis Month.
Camp Boggy Creek
Founded with one simple premise in mind, that every child, no matter their illness, could experience the transformational spirit and friendships that go hand in hand with camp. Camp Boggy Creek has made it possible for children with serious illnesses to enjoy a camp experience in a safe, medically-sound environment. Located just a short drive from Orlando, Florida, the 232-acre camp serves children ages 7-16 who’ve been diagnosed with chronic or life-threatening conditions.